A Post with No Name

Too tired to come up with anything clever, let alone descriptive. Since I have no idea what I am going to write about, this post will have to live with the name of no name.

I returned the pump today and got my shot. The WBC shot in my arm. Sue says I can expect to feel pretty rotten tomorrow but not to take to the bed. Ha! That is just what I plan to do if I feel bad. I may do some laundry and other house chores, but I am not going to do anything to exhaust myself. Can you exhaust yourself if you start out exhausted? Some of the more unusual side effects of the shot are pretty horrifying- blue lips and nails for one. I can't help but imagine a deep shade of turquoise. The one called "severe bone pain" is another one I would like to avoid. Sue says the most common bone pain is in the spine and sternum. I'll let you know if that happens to me.

Okay, mind shift. I cannot assume that I am going to feel rotten or be exhausted. I must believe that the day will bring what it will and that I will do what I can. Pat is going to work and Bennett is going with her for a time then on to a fun-filled day with Aunt Julie. That is the family plan for tomorrow. I will give you a full report tomorrow night.

Pray for an easy night for all of us. Miss B who is still in an angry phase, Pat who has been fighting a cold for almost two weeks, and for me just because.

Just Another Day

Of rest and relaxation and frustration. I am obsessed with getting this drug that helps WBC counts. All day I have been trying to figure out a way to talk my doc into giving it to me. I've asked twice already that I can remember. Pardon if I am repeating myself, but I can't understand why I can't have it. It's a drug called Neupogen, there's another one called Neulasta. They are expensive and have some side effects. Okay, what in this process isn't expensive (I happen to know my PET scan was $5200), and I am getting to know more about side effects every day. This totally blows.

Don't forget I am coming off being pretty angry about not getting chemo yesterday. I am also despairing of the fact that I have not once been able to have chemo on schedule (supposed to be every other Tuesday).

To be fair, the explanation that I got about not getting the WBC shot, is that they only use it for people who have much more rigorous treatments - let's say every week and it is not possible WBC counts in that time frame. BUT BUT BUT I want to say "I can't recover in two weeks, give me the shot." I will keep you posted on what Dr. B. says, I will call him tomorrow.

Here is the fab quilt that my sister-in-law sent. I forgot to say that Trisha specifically used fabric with bees just for Bennett.

Today was a quiet day - other than the obsessing. I hung out in the new bedroom while the cleaning lady made our house look a lot better. It's hard when everything is so old - the tub has got to be 60 years old, and the linoleum too. So it's clean, but it's worn, and it's ours and I love that it's all clean. I am so happy to have a mom who encourages me to do things like hire a cleaning person. She has an unusual name, so I don't want to use it without her permission, that is why I keep calling her the cleaning lady and not by a name. I did exactly what a person who is neutropenic is supposed to do - sat on my butt and did very little. I watched two TV shows about medicine - Grey's Anatomy and House. You'd think I wouldn't want to, but they were oddly compelling today. I knitted, I painted with Bennett. Here is one of the paintings she did today. Notice the pupils in the eyes - when she was painting them she said "and now the eyeballs." Pure genius.

A Little Bit of Pain and Anger

I am pretty much a mess today. I feel awful and tired. I am sitting on the floor trying to get some gas out- but it is so stubborn. My belly feels like there are tiny little mice with sharp teeth and claws running around in there. The docs said GasX, it doesn't really help. I read online that there is the kind of gas that you burp and the kind that is lower and that controlling the lower kind is difficult. No kidding. Oh, and the website (for a cancer hospital, I can't remember which one) also mentioned that it can be painful. Double no kidding.

This is not to say that I am online doing research about cancer- just chemo related gas. I did catch something about stages of colorectal cancer and that sent me into a small head spin. That is when I got out some fennel seed and started chewing, hoping against hope that it would work on the lower kind of gas. Because I want the gas to go away, I don't want to keep taking pain killers.

I haven't really been able to eat either. I was just going to say that I am not nauseous, but I am not sure that's true. Everything smells a little off and thinking about eating just makes me think "ewwww."

I haven't even mentioned how angry I am today. I am pretty mad. It seemed like my life was going pretty well, and bam! Now I can barely take care of Bennett. Monday is my day with her now that she is in school Tuesday, Wednesday and Thursday. And we had to call Aunt Liz to come get her, I just couldn't manage. That pisses me off. And you know what? it's not the cancer, it's the chemo. It feels really wrong to be mad at the chemo, when that is what is saving my life. You'd think I'd be normal and be mad at the cancer. Well, until a few short months ago, we seemed to be getting along just fine.

How twisted is this? It is how I feel though. I have at least four more chemo rounds to go - that's just until the next scan. My plan is for the docs to be so shocked that they 1) see only spontaneous remission, 2) order surgery to take out the little bits that remain. Let's all pray for #1, with #2 a good fall back.

That was my imperfect day. I can't even pep talk myself into feeling any better. I think it's time to do a little gratitude check with God. I'll keep you posted.