Fighting this beast like a warrior

Fighting this beast like a warrior

Thursday, February 23, 2012

Ruth's service

Ruth's service will be held on February 25th at 12 noon in St. Paul's Episcopal Church, 485 Appleton St., Holyoke, MA. In lieu of flowers, memorial donations in Ruth's name may be made to The Cancer Connection, 41 Locust St., Northampton, MA 01060.

Sunday, February 12, 2012

WTF?

So we've been in St. Lucia for two days.  For those two days, I have been in bed, in pain, confused, and sometimes hallucinating.  Bennett and Pat were total troopers on the way here [Pat interjects that Ruth was a total trooper on the way here, too.]  And the flights were easy.  The people were super helpful.  We got golf carts and wheel chairs.  It was like the seas of crowds parting when we need to get checked in or needed help of any kind.  It was a long, long day of travel.  We got up at 2 a.m. and arrived here at 6 p.m. (with an hour time difference).  The car ride from the airport was over 2 hours.  I haven't been outside yet, so I don't have much to tell you, but according to my sources, the beach, not too far away, is beautiful. We have our own little pool out our back door.  Bennett has been wearing her hello kitty swimming suit almost the entire time.  I did make it downstairs yesterday and am downstairs right now.  I had a shower today, which I desperately needed.  Here we are in the living room.

Wednesday, February 8, 2012

Have't Been Posting Much

That's true. I have been trying like cray to get the meds in order so I am spaced out or in pain. Today was pretty good, but I spent the day in bed getting over last night and yesterday. Cooky, the Hospice nurse came over today to told me that it might be a progression of the disease. Maybe the slow typing is too.

I feel pretty awful, but am still looking forward to our trip. I like to get text messages, comments and emails. Call, at this point are a little taxing.

I have missed my texts, but I am working really hard to make this balance work out.

Sunday, February 5, 2012

Another day, Just Like Yesterday

Slept a lot, the pain was under control, but only when I was totally out of it. I have to say that all sleeping feels great, I am not joking.

I don'r really have that much else to yay. It was nice to see Aunt Ruth. twice, and it was lucy to talk to Jessica - for about four minutes before I feel asleep on her. kkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkk

Like I just did again. I good night.

Saturday, February 4, 2012

Hey Dude

I am having trouble getting the dosage just right, so I have been doing a lot being in pain one minute and dozing off the next. I spent most of my time in bed. It was sort of a sad but perfect day. I wasn't sad at all, I was just drugged and not really understanding what I should do. I think this will be the long haul of trying to get to comfort without knocking myself out.

Pat took B to the Winter Festival with Avy, Emma, Sandy, Brad. Pat said it was fun and I am super glad they all went. I slept. Which I am going to do right now. I got to Skype with my sister Janna and her daughter, Rachel, son-in-law Alexis and grandson, Eliott. That was pretty fun, I have say. I really like to skype. My Skype name is rvanerp46. Please feel free.

More tomorrow.

Friday, February 3, 2012

Here I am, Not to Worry

I haven't posted the last two night, and have learned for some, that is too long. I can't remember what happened Wednesday night, but last night it was just impossible to get B to go to sleep. We were all exhausted and it was a bad combination. Finally  she went to bed. Pat finally had some time to talk and, rocks or not, it''s hard. We have a lot going on, to say the least. I love her so much, and she works so hard, and is the most talented person I know. She has giving me the time of my life.

Bennett is doing great- ish. She asks me a lot of questions about me going to Heaven and what I can take with me. It's a relief every time she asks a question. I just hope she keeps asking.

Pat picked up the Chinese Herbs for me the day before yesterday. Then spent the entire evening boiling, mixing, reboiling, over huge pots. The first night, I acted like a baby, and made a big fuss about having to take them. Then I woke the next morning with no evidence of a hot flash. Same for last night. Now I don't make a peep.

So I am slowing down and feel it. I am trying not to let it demoralize me, but it's hard. That's all I can say.