Fighting this beast like a warrior

Fighting this beast like a warrior

Tuesday, June 26, 2012

What a weekend

We are still recovering.

What a weekend mostly great!  We had a bit of a hard time at the graduation.  Bennett and I both had a difficult time.  I struggled with how to support her and myself.  One of the parents came to me and said we were doing what we needed to do - which was crying and hanging on.  That was wonderful to hear and helped me just continue.

Aunt Ruth and Tanta Di were there steadfast and supportive.  Tanta got a video of the kid next to B hitting her which sent her off.  I cannot blame him since he ended up leaving to go to the er with low blood pressure.  This is just pre-school!

The trip to NYC was great.  Bennett loved seeing the babies and I felt like we did the right thing seeing her with them.  Dori was the co-pilot which was great she was wonderfully social after a glass of wine and was able to keep up with B after the party.  I think we jogged a mile or so after B in Manhattan.

B getting grad certificate
Next day was the big b-day bounce house in the park.  We did it!  Bennett was mostly great - having fun with her friends.  I loved all the people who came - they were wonderful!  Bennett had more presents than she could open in a day.

Aunties and Sisters made it happen- thank you!   

Monday Estelle came to hang out with us - she is such a great kid.  At one point in the day B and Estelle were walking through the house and B was telling the story of when Momo died.  Estelle just listened to B it was incredible to watch.

Dori and I went to the gym  and ran 3.5 miles.  Today I ran with Zeus 3 miles today.  We did not do much today -sadly said goodbye to dori and then cleaned.  Tanta Di shopped and we just relaxed.   

Friday, March 23, 2012

One Month

It has been one month.  I promised myself to post what Ruth's close friends said at her memorial.

Bob and Jim Kempster


I had the honor of offering reflections at the memorial service for our dear friend Ruth Van Erp yesterday. I first read the following reflections from Bob (who to our surprise had known Ruth longer than anyone else in the room other than her family) and then followed them with a poem I'd composed over the three days since we'd gotten the news of Ruth's death.

The day I first met Bob at NYU 23 years ago, he told me he was excited for me to meet his friend Ruth. He spoke of her like they had known each other forever, a year or two already. Turned out it had only been a week. But the first day they met they had spent seven hours together talking and had became instant friends.

Here are some of Bob's memories of Ruth:

She was always driven to make her art, even when no one else would be. She'd be the last one in the back of the studio, using the collar of her white T-shirt to rub the clay from her face. It didn't matter to her whether she would become a famous artist, she just needed to do her work, and continued to do so, for as long as she could.

My best early memories of Ruth were visiting the polish restaurants in the East Village for banana pancakes, where we would try to out-eat each other, while we discussed the bad artwork being made at the time: the wordy conceptualists that these two very intuitive, visual, sensual artists couldn't relate to. But then we'd ask for extra butter and syrup and all our problems would dissolve.

After the tearful day Ruth moved from Brooklyn to Massachusetts, our time together consisted mostly of phone calls, and she'd tell me of making jam, reading a book, working in the garden, playing with Bennett, making dinner for Pat, working on stained glass. I wouldn't realize until the end of the conversation that she'd done all of that in one day.

I watched her evolved from a youth with a lot of hidden secrets of pain, to an amazingly open person who was very giving and insightful.

I will always remember the many times Ruth and I walked arm-in-arm through the streets of New York City.

She was more like a sister than a friend.

She was my hero.







Not Ruth

Ruth was not a woman.
She was a mother goddess in Vulcan's work clothes,
a fashioner of flesh from clay,
the gardener and the garden all at once.

Ruth was not beautiful.
She was a majestic mountain range,
the vast blueness of a rolling ocean,
the entire sky at dawn.

Ruth was not a friend.
She was the seat of wisdom comfortably upholstered,
unconditional forgiveness smiling softly,
a warm embrace coming from six feet up.

Like with anyone larger than life,
it's sometimes easier
to say what was not
than to grasp what was
completely,
and attempted definitions
dissolve into poetry,
into silence,
bigger truth.

Our beautiful
woman,
friend Ruth,
mother,
wife,
sister,
artist,
garden,
ocean,
mountain,
sky,

wisdom...

love....

I want to say I'll find her in the landscape, the sea and the sky.
Buy a book at the Strand or eat a Polonia,
and recognize her in the book or the breakfast.
Or see her peering through her stain-glassed panes in our home,
or hear the lilt of her voice in a passage from her blog,
or catch a glimpse of her in her daughter's smile.

But I know the absence will be truer,
the silence
more honest

and vast enough to hold her being,

and to teach me how
to know her
when I need her most
when I feel her
most
not
here.


Julie Pokela

My good friend Ruth van Erp died last week, leaving behind her 4 year old daughter, Bennett, her wife Pat, and many grieving relatives and friends. This is the remembrance I read at her funeral.

Ruth van Erp was taken from this earth much too young. She had so many
gifts that the world could use. With her passing, how much more important it
is that we pay attention to what Ruth brought us.
For me, one of the biggest gifts from Ruth came the day I met her. My wife
Liz and I were at an event at Snow Farm and Ruth and Pat came up and
introduced themselves. It was in the spring of 2007, and Pat was very
pregnant. Ruth told us that they didn't have any relatives in the area and
they had heard that Liz and I loved kids. Ruth asked us if we would be
aunties to their baby. Without a second's hesitation, we said yes.
Then Ruth asked if we would like to take Bennett one day a week. At that
point we hesitated. Not because we had any concern about spending a day
each week with their baby--we knew we'd love that-- but because we didn't
know Ruth and Pat. Liz had taken welding classes from Pat at Snow Farm
and really liked her, but we knew that having their baby one day a week
meant committing to a relationship with Ruth and Pat, and we didn't know
them. But it was such a generous offer, we threw caution to the wind and
said yes.
Whenever I've thought about that day, I thought the gift was being able to be
Bennett's auntie. Everyone who knows me knows what a gift that is. But in
retrospect, another gift of that day was the example of Ruth's courage. The
courage it took for Liz and I to say yes was small compared to the courage it
took to ask us. Ruth didn't know what our parenting styles were--for all she
knew, we could have spent every Sunday filling Bennett with junk food and
teaching her to swear. But Ruth was committed to creating nearby family for
Bennett. And like families of birth, families of choice can be filled with all
kinds of characters. But aside from our individual idiosyncrasies, what a
child needs is a foundation of love, and Ruth created a world in which
Bennett gets unconditional love from lots of aunties.
Ruth's courage also showed with her biological family. Ruth had had longstanding
breakdowns with her biological family. Liz and I have taken
courses with Landmark Education, and when Ruth saw how we were
reconciling with our families, she wanted to explore that, too. Ruth took a
course and through it, chose to take responsibility for the breakdowns with
her family. It takes incredible courage to call members of your family and to
apologize for creating the distance between you. At the time Ruth made
those calls to her mother, sisters, and brother, no one knew how precious
those relationships would become in the very near future. How different
today would have been if Ruth hadn't made those calls. Janna, Joanne, and
Mary--you know how much Ruth needed you and your mother's words,
prayers, and love through her fight with cancer. Each of you provided
something precious to Ruth and helped her through her hardest days.
But Ruth's greatest courage was in her battle with cancer. I don't mean to
imply that Ruth wasn't afraid. You don't need courage to face situations you
have no fear of. Courage is what you display when you move on through
your fears. And Ruth spent the last year and a half doing that, and giving the
gift of sharing it with us through her blog. In reading Ruth's blog, I could see
how much of what I fear has to do with the future: after breaking my arm,
leg, and back in the past couple of years, am I going to keep breaking
bones? will I be able to keep my business afloat through this rough
economy? What will my dinner guests think of the food I'm preparing? When
I get caught up in worrying about the future, I think of Ruth's words: the
future is in God's hands, we need to live each precious day, present to what
that day brings. For Ruth, part of living each day was traveling: to England
and California, to New York City, on a final vacation to Saint Lucia. But
mainly, it was about being present to ordinary days--going to the
playground, to A to Z, getting ice cream, giving Bennett baths and reading
her books.
How difficult it is to live in the present--how much we take our short time on
this earth for granted. I hear myself and others saying: I can't wait to go
home tonight, I can't wait until this week is over, can't wait until I go on
vacation, I'm worried about next week, next year. In her blog, Ruth reminded
us that hours and days of our lives slip like sand through an hour glass, and
while we act like we have all the sand in the desert to waste and take for
granted, none of us knows how much time is allotted us--we need to take
stock of what we want to do with the short, precious time we have on this
earth, to feel happiness and grief, and sorrow and joy; to laugh and to cry;
and most of all, to love the precious people who are in our lives. To have the
courage to live in the present. To make each day count, as if it could be our
last. It could be.
I have been looking at Ruth's amazing art with new eyes--seeing it freshly,
appreciating it more, knowing no more will be created. And thinking about
her fascination with wings: how much of her art has wings, including the
wings she had tattooed on her back. As if at some level of her
unconsciousness, Ruth knew she would soon need those wings to carry her
from this earth.
And now that that has happened, look at the world Ruth's courage has
brought. A strong web of family of choice and family of birth, with Pat, the
love of Ruth's life at the center, pulled together to hold her precious Bennett,
to give her the base of love from which she can grow and explore the world,
and prepared to gently catch.

Sandy Diaz

All of us here knew Ruth from different parts of her life and each of you has your own special memories of how you knew and loved Ruth. I was probably Ruth’s closest ‘mom’ friend. I was sitting at Sargeant Street Park with my then-infant daughter when this big woman with a big smile and a little baby in a Snuggli approached me with a friendly hello. We discovered we had a mutual acquaintance and Ruth would soon join a weekly baby and toddler group that met over the course of two years.

Ruth and I were the same age—older moms in a universe of mostly younger ones—and perhaps because of that I think we shared a certain perspective, which is hard for me to define. Maybe it made us a little mellower, more accepting, less likely to be competitive. I know that it was easy just to be with Ruth.

 Over time, our little group disbanded, but Ruth and I continued our friendship, which was largely centered around being mothers. As Bennett and Avy grew, luckily for us, they became friends, too. BFF’s, as Ruth liked to say. Raising young children can be alternately exhilarating, inspiring, frustrating, and sometimes, downright tedious. Sharing this parenting journey with Ruth made it so much easier and even more important, fun. Ruth was generous on so many levels: She sometimes picked up dresses or little things for Avy when she was out shopping for Bennett, which she loved to do, and she seemed to revel in Avy’s emerging personality and development nearly as much as Bennett’s.


We spent many days together in what seemed like simple, mundane activities, but which now, in Ruth’s enormous absence, seem anything but. We met at the park and ate cookies or sandwiches while our daughters climbed on the play structure. We pretended to be monsters and chased them around the park. We went to Music Together classes and then out for pancakes, burritos, or noodles. We poked around consignment stores and went to Nick’s Nest for hot dogs and ice cream—with Ruth, ice cream was often involved— and took walks with the girls. We went snowshoeing a few times with Avy and Bennett strapped to our backs. We sat on the beach while our daughters splashed at the water’s edge and later waded with them when they learned how to swim, first at the beach and then at a local swimming pool. We picked berries and tomatoes together at the farm we belonged to, while Bennett and Avy raced barefoot between the rows of raspberry canes. We often sat in Ruth’s kitchen and chatted over tea— about our lives, local politics, schools, people we knew, our hopes for our children—while Bennett and Avy, dressed as Princesses, danced around and fought over Calico Critters or who had the biggest cookie or the prettiest cupcake. Ruth was always much better than I at gently defusing these little squabbles.

Anyone who has been in Ruth’s house knows that she had a rich life. She was an amazing artist and her house is filled to the brim with stained glass windows, pottery, prints, sculpture and other art that she created. She loved to cook, make homemade pickles and jams, read, garden, and knit. I am sure some of you, or your children, have hats or sweaters or socks knit by Ruth’s able hands. But I think her greatest creation and probably her biggest joy was the family, the home, and the life she created with Pat and Bennett, clearly the great loves of her life.

Ruth delighted in showing the world to Bennett and she strove to make sure she had good experiences in life, from travel to music classes to organic vegetables from a local farm to a great preschool and afternoons spent outdoors at the park, Canoe Club, or farm. Recently, she was excited about the possibility of sending Bennett to a circus arts program. In Ruth’s absence, I know that she would want all of us to continue to show Bennett that the world can be an amazing and beautiful place, despite the pain and suffering that it also contains. I know Ruth’s three sisters and her great friends, Aunties Ruth and Theo and Liz and Julie, and others, including myself, will take up where Ruth left off, helping Pat and Bennett to not just make their way in the world, but to live life the way Ruth did: fiercely and with love.

Ruth had such generosity of spirit. She helped me many times with struggles much, much  smaller than the colossal one she ultimately had to face. For that, I will be forever grateful. But mostly, I am just thankful that she was my friend. She showed me, again and again, that the best kind of life is a life shared with others. Thank you, Ruth, for all that you gave us. I love you, I miss you, and I will never forget you.

Me

Thank you for making Ruth's memorial worthy of Ruth.  All I can say is that I love Ruth more than anyone I have ever met.  She made me whole and broadened my world.

I will try to deal with and share some of my loss in a blog 1000 miles for the next year.  thanks Pat http://runaway1000miles.blogspot.com/

Thursday, February 23, 2012

Ruth's service

Ruth's service will be held on February 25th at 12 noon in St. Paul's Episcopal Church, 485 Appleton St., Holyoke, MA. In lieu of flowers, memorial donations in Ruth's name may be made to The Cancer Connection, 41 Locust St., Northampton, MA 01060.

Sunday, February 12, 2012

WTF?

So we've been in St. Lucia for two days.  For those two days, I have been in bed, in pain, confused, and sometimes hallucinating.  Bennett and Pat were total troopers on the way here [Pat interjects that Ruth was a total trooper on the way here, too.]  And the flights were easy.  The people were super helpful.  We got golf carts and wheel chairs.  It was like the seas of crowds parting when we need to get checked in or needed help of any kind.  It was a long, long day of travel.  We got up at 2 a.m. and arrived here at 6 p.m. (with an hour time difference).  The car ride from the airport was over 2 hours.  I haven't been outside yet, so I don't have much to tell you, but according to my sources, the beach, not too far away, is beautiful. We have our own little pool out our back door.  Bennett has been wearing her hello kitty swimming suit almost the entire time.  I did make it downstairs yesterday and am downstairs right now.  I had a shower today, which I desperately needed.  Here we are in the living room.

Wednesday, February 8, 2012

Have't Been Posting Much

That's true. I have been trying like cray to get the meds in order so I am spaced out or in pain. Today was pretty good, but I spent the day in bed getting over last night and yesterday. Cooky, the Hospice nurse came over today to told me that it might be a progression of the disease. Maybe the slow typing is too.

I feel pretty awful, but am still looking forward to our trip. I like to get text messages, comments and emails. Call, at this point are a little taxing.

I have missed my texts, but I am working really hard to make this balance work out.

Sunday, February 5, 2012

Another day, Just Like Yesterday

Slept a lot, the pain was under control, but only when I was totally out of it. I have to say that all sleeping feels great, I am not joking.

I don'r really have that much else to yay. It was nice to see Aunt Ruth. twice, and it was lucy to talk to Jessica - for about four minutes before I feel asleep on her. kkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkk

Like I just did again. I good night.

Saturday, February 4, 2012

Hey Dude

I am having trouble getting the dosage just right, so I have been doing a lot being in pain one minute and dozing off the next. I spent most of my time in bed. It was sort of a sad but perfect day. I wasn't sad at all, I was just drugged and not really understanding what I should do. I think this will be the long haul of trying to get to comfort without knocking myself out.

Pat took B to the Winter Festival with Avy, Emma, Sandy, Brad. Pat said it was fun and I am super glad they all went. I slept. Which I am going to do right now. I got to Skype with my sister Janna and her daughter, Rachel, son-in-law Alexis and grandson, Eliott. That was pretty fun, I have say. I really like to skype. My Skype name is rvanerp46. Please feel free.

More tomorrow.